Research project looking for lived experience

The CECiLiA project aims to understand how Care (Education) and Treatment Reviews (C(E)TRs) are experienced by people with learning disabilities, autistic people, and those who support them. Central to the project, is a commitment to listening to lived experience, ensuring that people’s voices shape how services are improved. 

The research is delivered in four stages. It begins with a national co-designed survey, created alongside lived experience advisory panels, to gather wide-ranging views. This is followed by in-depth exploration of people’s real experiences through observation and interviews. The project also analyses existing NHS data to understand outcomes, including hospital stays, and brings all findings together to identify what works best in practice. By working in partnership with organisations and communities, CECiLiA aims to improve how C(E)TRs are delivered and ensure they are more effective, inclusive and person-centred.

The project has had 550 people completing the survey, but the researchers are still looking for more. You can find out more by completing an expression of interest form. The team state that the survey should take no more than 30 minutes and you can receive a £20 gift voucher as a thanks for taking part. You can also view the project’s  newsletters and sign up for updates.